Welcome to the Ledderhose disease (plantar fibroma) blog.

My name is Gary and I am the author of this blog. I am a ledderhose patient from the UK. I am an ex-scientist and hold a degree in Molecular Genetics and I try and put this experience to good use exploring this condition.

I have pages here about the treatment options, patient experiences including my own, insights from medical professionals, explanations of the science and whatever else I think may be useful for fellow patients. Through the blog I have made contacts with many patients, professionals and charities and now work as a trustee for the British Dupuytren's Society.

Hopefully you can find the pages you want using the navigation menu above or use the search box to look for specific information.

Hope you enjoy reading the blog and please contact me at ledderhosedisease@gmail.com or leave a message on here to get in touch. All information will be kept private unless you tell me otherwise.

Thank you for visiting.

Wednesday, 19 October 2016

The Running Vests are here

The running vests have arrived and they are very nice. Katie and I have tried them on and taken them for a run this evening, very comfortable and they have the charity name in nice big letters. Here are a few pictures.

Saturday, 8 October 2016

Author in a book

I am delighted to say that the new Dupuytren's book that has been published as a result of the conference in Holland last year. I am co-author in 2 of the chapters due to the patient survey that I initiated. I was unable to help too much with the actual writing of the chapters as it came at a busy time time in my life but luckily Anna stepped up and did a fantastic job. I am being sent a free copy of the book and looking forward to it arriving. If anyone wants the book they can get it here

It is funny how things go though, 4 years ago I was giving up my PhD due to the pain that Ledderhose disease was causing me, I put a lot of my life and time into my blog and researching the condition. It was from the blog that I became a trustee for the British Dupuytren's Society and this gave me the confidence to begin the survey. As a result of so many patients filling in the survey I got the chance to present the results at an international medical conference and now my work is published in a book.